294354 VAT Registration no. Rob Burrow won eight Super League titles in a trophy-laden career for the Leeds Rhinos; he was diagnosed with motor neurone disease in 2019 but believes there is still a lot of work to be done. In one heartbreaking scene on the documentary, Burrow's wife, Lindsey, said: "[Rob] always says, 'Find someone else, you're still young' There will never be anyone else.". A huge well done and thank you to Oxen for producing this shirt to mark this special relationship and continuing to raise funds to support us in our fight against MND.. Rob Burrow: Living with MND documentary on BBC Two to give 'unflinching' account of life with motor neurone disease BBC Two has commissioned a half hour documentary from BBC Breakfast which. Rob laughs because he knows his dad. Speaking through his communication aid, Rob shares his thoughts on his love for his family, his determination to remain positive and his desire to raise awareness of the disease to help the MND community. Rob won eight Grand Finals with Leeds Rhinos as they dominated rugby league from 2004 to 2017 and. Robs moving memoir, about his rugby career and his extraordinary resolve as he fights against MND, is published this week. I am stable now. More research needs to be done.. But it is all so insignificant now., How would they feel if their little boy Jackson, who is not quite three, plays rugby one day? Rob was diagnosed with MND in December 2019. Jude de Vos: 7 Stories of MND. I have changed my opinion about living in the moment, he writes one evening. A new documentary, Rob Burrow: Living With MND, takes an up close and personal look at how MND has impacted Rob and his family. In the hour-long interview, the couple gave an insight into day to day life in the Burrow household. Burrow, who had already won the Harry Sunderland Trophy as man of the match in the first of the Rhinos' previous Old Trafford victories over Saints in 2007, scored a brilliant individual try in the first half, then laid on the match-winner late in the second for Ryan Hall with another thrilling scamper. I wish I could have just one day with Jackson and be his dad. It feels almost magical as his familiar Yorkshire voice fills the room even though Burrow is smiling gently rather than moving his lips. I never had any doubts. Its really tough doing those interviews, but I dont want people to be sad. I have not thought about that part of my journey, he says. Registered Charity no. Lindsey will soon settle Rob into his special hospital bed, which can be raised, as it is hard for him to lie on his back. It has completely changed my life, he says. In the heart-wrenching documentary, he says: Im a prisoner in my own body, thats the way MND gets you. By donating to our appeal, you can help us create The Rob Burrow Centre for Motor Neurone Disease, which will see all MND services . The 38-year-old, who won eight Grand Finals and 20 international caps during a long and memorable career, has a ravaging form of motor neurone disease. Shower me, dress me, feed me, take me to the toilet, constantly asking if I need a drink or my medication. He was a tower of strength and I thought: If Rob can be positive about this, well make the best of it. I also remembered my line manager at work telling me she had lost a family member through a heart attack and they hadnt had time to say everything they wanted to say or to make more memories together. Since then he has used his profile to shine a light on the devastating disease, teaming up with other sportsmen including Doddie Weir and Stephen Darby to raise awareness and call for more research into the disease. He remained a one-club man right until the end for he was an academy coach when the disease changed his life. Not only can it cause speech and swallowing difficulties, life expectancy can be as short as six months from the onset of symptoms. asks Dr Jung. In 2018, Katie's dad Warren died of MND. This may include adverts from us and 3rd parties based on our understanding. I have run out of superlatives to describe her. The documentary shows his wife, Lindsey, who Rob met when they were teenagers, care for him as she juggles looking after their three young children, 10-year-old Macy, seven-year-old Maya and three-year-old Jackson, as well working for the NHS as a physiotherapist. Me doing an interview is nothing compared to what Rob and many other sufferers go through, it puts it into perspective and, if we can help one other person or raise more awareness and more funds for research, it can only be a good thing. We are pleased to announce that the tickets for our Summer Charity Ball in aid of The Rob Burrow Centre for MND Appeal are now available to Liked by Antony Bray. It makes me wonder, in my current situation, how I ever could do it. Rob Burrow paid tribute to his late friend and "MND hero" Doddie Weir after receiving an award at the BBC Sports Personality of the Year ceremony on Wednesday. Pale Yorkshire sunshine streams in through the windows. The second love story is between Rob and Lindsey. They were asked to write about someone who had inspired them and Macy chose to write about her dad, explained Lindsey. In this heart-breaking 30-minute BBC Two film, viewers get unparalleled access to his life. He and his wife, Lindsey, who has been with. Visit www.mndassociation.org for more information. And remember, Rob, when you broke your collarbone? Burrows mind is as sharp as ever and he uses a piece of technology called Eyegaze to respond. The ex-Leeds Rhinos scrum-half scooped the Helen Rollason Award for his incredible work in raising awareness for the debilitating disease MND. Rob is such a wonderful man and I am the person I am because of him. Home of the Daily and Sunday Express. I would have been disappointed with myself because look at the way the club helped me through the disease., Even when I remember the shimmering blue streak of Burrow in that 2011 Grand Final, and contrast it silently with the motionless man in the damaged shell of his body, Rob and Lindsey offer a fresh perspective. He told Lindsey that, while he accepted the hard truth of the diagnosis, he would fight the prognosis and try to live for longer than the doctors predicted. I dont think I have declined. Geoff is so positive and thats where Rob gets it from, Lindsey says. Lindsey sits with us as we approach the end of another moving interview. Wenn Sie Ihre Auswahl anpassen mchten, klicken Sie auf Datenschutzeinstellungen verwalten. It was almost as if her new platform boosted her in the eyes of previously sceptical colleagues. Since then he has used his profile to shine a light on the devastating disease, teaming up with other sportsmen including Doddie Weir and Stephen Darby to raise awareness and call for more research into the disease. You walked off the pitch but it was difficult. Rob and his wife Lindsey, who cares for her husband full-time despite having to look after their three young children and holding down a job as a physiotherapist, are the subjects of BBC documentary Rob Burrow: Living with MND, which airs next Tuesday. We had three beautiful, healthy children, good jobs and nice holidays. Sinfield added a simple goal, and the Rhinos had poached an 8-2 lead. But his eyes confirm he is laughing. But it can't sap your spirit". I know how I feel more than anyone and I have never been anything other than positive., He lost all sense of smell and taste last month. Shell regularly take me for a walk a lap of the house to make sure my back doesnt ache and to keep me moving. Registered Charity no. It just puts me in a different role. Now an MND Association Patron, Rob is one of an estimated 5,000 adults in the UK currently living with MND. Rob Burrow has no regrets about playing rugby league and would not discourage his children from following in his footsteps. We have shared an unexpected amount of laughter as this extraordinary couple set me at ease despite Robs harrowing illness. Im in more of a carers role now. With your help, we hope to save other families from the heartache of an MND diagnosis in the future. In Robs book, Dr Jung explains that her MND patients want to find peace in their heads. Weitere Informationen ber die Verwendung Ihrer personenbezogenen Daten finden Sie in unserer Datenschutzerklrung und unserer Cookie-Richtlinie. Rob Burrow hopes drug will help in his battle with Motor Neurone Disease The 38-year-old was diagnosed with MND in December 2019 and is now confined to a wheelchair. He continued: "You expect to have to do these sorts of things when you are old and have been together for ages. Theres something beautiful, Rob says, about being cared for by the only girl youve ever loved., Kevin Sinfield: 'To see Rob on the finishing line made it so special', Original reporting and incisive analysis, direct from the Guardian every morning, Rob Burrow, of the Leeds Rhinos, England and Great Britain. Rob Burrow leaves BBC viewers in tears as footage shows decline from MND Rob Burrow left viewers in tears after he scooped an accolade at the BBC's Sports Personality of the Year awards. She turns gently to Rob: I think you see things differently to me because of my medical background. I want to make the most of the time I have left, Kevin Sinfield: 'To see Rob on the finishing line made it so special', Original reporting and incisive analysis, direct from the Guardian every morning. But this once cheerfully garrulous man is now a silent prisoner in his body as MND paralyses him and prevents him from talking. As soon as I start talking about Rob and the children and the future, thats where it pulls at your heart strings. If Lindsey felt down he would join her in a slump of depression. When you dont have that scientific knowledge and you look on the internet theres a lot to read. Lindsey and Rob Burrow have been together since they were 15. Help us raise 5 million to build a specialist MND (Motor Neurone Disease) Care Centre in Leeds, to give people living with MND the best quality of life. But now he works so hard on researching and coming up with reasons for hope. Bei der Nutzung unserer Websites und Apps verwenden wir, unsere Websites und Apps fr Sie bereitzustellen, Nutzer zu authentifizieren, Sicherheitsmanahmen anzuwenden und Spam und Missbrauch zu verhindern, und, Ihre Nutzung unserer Websites und Apps zu messen, personalisierte Werbung und Inhalte auf der Grundlage von Interessenprofilen anzuzeigen, die Effektivitt von personalisierten Anzeigen und Inhalten zu messen, sowie, unsere Produkte und Dienstleistungen zu entwickeln und zu verbessern. In another testing final against St Helens, Burrow receives a pass just over the halfway line at Old Trafford. I think its uplifting, she says of the book. You could not put into words how grateful I am to have met Lindsey. Rob fixes his gaze on the send button and his texted answer is spoken by an approximation of his voice recorded during the earliest months of his illness. "He'll sit and watch television and I'll make him his breakfast and get him his lunch and take him to the toilet throughout the day. Oh yes, hes used to me talking every minute anyway, Lindsey says with a laugh when I ask if Rob can concentrate while we talk. Burrow, 40, won eight Super . It gives you more incentive to never give in. His sporting profile meant she was invited to speak on television about Rob and MND. I could not get through this without the love and support of Lindsey.". In December 2019, Rob Burrow was diagnosed with motor neurone disease (MND) at the age of just 37. He completed seven marathons in seven days in 2020, and then in 2021 he ran 101 miles in 24 hours, raising millions of pounds for MND research and support. One day, before I know it, I wont be able to enjoy these timeless moments. Its a happy place.. Life was perfect. His wife Lindsey agrees as she revealed the illness has taken hold faster than they had anticipated. For people who have been through tough times with Covid it will make them feel that, no matter how hard things become, there is always something to look forward to in life. Last December, former Leeds Rhinos Rugby League player Rob Burrow, 38, was diagnosed with Motor Neurone Disease (MND). "When you start to be reliant on aids and adaptations that you become reliant on them so I think being a physiotherapist you know 'no pain no gain' sort of thing, we'll keep him going as long as we can do.". Rob Burrow has no regrets about playing rugby league and would not discourage his children from following in his footsteps. It makes me feel privileged for it to mean so much to her., A dark rain falls outside but there is still so much light here. But I still love every minute we have together. If I do not bring the topic up, that conversation will never happen. At the end of the day she has to assist me upstairs and put me to bed. Lindsey and Rob met as teenagers. He collected a pass just inside the Saints half, ran deliberately at two of their biggest forwards and ducked his small frame beneath a couple of bulging biceps. It is the only way that the former England, Great Britain and Leeds. Express. "I know when you get married you say, 'in sickness and in health'. Photograph: Christopher Thomond/The Guardian, Rob Burrow: Ive had such a wonderful life. The optimism is great. He said: "I am totally overcome with this award due to the amount of amazing people that have won it before, in particular my MND hero Doddie Weir. You can donate and see updates of his progress on his Give as you Live donation page . Rob Burrow sidesteps past Paul Wellens on his way to a memorable try in Leeds Rhinos Grand Final win in 2011. Shes also mummy to our three kids a sort of single parent now. Having listened to Dr Jung explain how much it meant to her, Rob says, I completely empathise. A tug of sadness soon lifts as I remember what sustains them. Kevin's efforts have led to over 2 million being donated to an array of MND charities. ", Gary Marks wrote: "The Rob Burrow / Kevin Sinfield bit (and they both got awards) had me in floods of tears. I was afraid of failing, he says, but never scared of playing., We become nostalgic when I ask Rob which game he would watch again if he could relive only one last match. Former Leeds Rhinos scrum-half Rob Burrow MBE was diagnosed with motor neurone disease in December 2019, just two years after ending his playing career by captaining Leeds to a record-extending eighth Super League Grand Final. When we were on holiday a few weeks ago they had chicken tenders and burgers on the menu and Rob said later he wished he could have had something like that. No-one can ever take Rob's place.". Analysis and opinion from the BBC's rugby league correspondent. He said: If the doctor gives you two years to live then double that with me. Thats Robs philosophy., Absolutely, Rob says. He felt isolated in his stricken body. I will accept the award on his behalf. She says their acceptance of death means that our clinic is not morbid or morose. While Rob methodically types his answers, Lindsey chats to me. Since my diagnosis I see the moment as it is and find meaning in it. 294354 VAT Registration no. Simple things are now possible, like being able to ask the kids: Hows your day at school been? Or he says: Lindsey, can I have a coffee? Its lovely for me and the kids. Were out in the garden in Castleford, at the home of Robs parents, and there are times when its possible to almost forget the deadly impact of motor neurone disease. What does your dad always say, Rob? At the end the interview, Rob just had a bit of time to play the Yes/No game, showing he's clearly still got his strong sense of humour: Researchers in Sheffield working on treatments for motor neurone disease say they're making good progress, but need more funding. I crave anything I cannot eat, especially when the kids get a Dominos [pizza]. He and Rob are so determined., Lindsey is a physiotherapist who has worked with MND patients for years. The teams were locked at 2-2 after an attritional opening half-hour in the steady Mancunian rain when Burrow broke the deadlock with one of the most spectacular tries in the Grand Final's 14-year history. She was really pleased with Rob and his weight has been stable, Lindsey says. This is the second time Rob has generously allowed the cameras into his home to raise awareness, after sharing the first year after being diagnosed in the documentary Rob Burrow: My Year with MND, which was released in 2020. 316 4340 28, Benefits advice service for motor neurone disease, Needs assessment, home care and home adaptations, Benefits, financial support and cost of living, Getting the right treatment or care with MND, Information for people with or affected by MND, Information in other languages and formats, All-Party Parliamentary Group (APPG) on MND, Using animals and stem cells in our research, Cognitive change and frontotemporal dementia. The programme follows Rob on a trip to the swimming pool with wife Lindsey, cheering on his children at school sports day and an appointment with his neurologist. I'm honoured to have played alongside him. We use your sign-up to provide content in ways you've consented to and to improve our understanding of you. In late 2019, Rob Borrow and his family learned that he had an incurable disease that would require 24-hour care. Rob Burrow believes lockdown has "accelerated his demise" with MND spreading to other parts of his body. I also receive longer and more textured responses from Rob when Lindsey emails his answers. I had speed and agility. "In between that there's the kids, picking them up from school and taking them here, there and everywhere so it's quite full-on but Rob needs help with pretty much everything.". No one deserves to have their world turned upside down. "Rob obviously wants to start games, but he's shown humility and integrity to do things for the benefit of the team. It makes me want to see more triumphs., But there is sadness too. Antony's public profile badge Include this LinkedIn profile on other websites. They hear him saying that he loves us and its totally Rob. I am hard working and . In his book, which is released on August 19th, Burrow revealed that they have kept adaptations in their home to a minimum as they don't want their kids growing up in a hospital-style environment. With the amazing support shown by the Rugby League community, fans buying the shirt contributed to a 42,420 donation made to the Motor Neurone Disease Association last month. Looking back we had everything. His voice echoes around us: I would love Jackson to play and Id support him whatever path he chose.. Texts cost 7, plus one standard rate message. I felt on top of the world, he says of the news about Maya. "You and your family are truly an inspiration," one fan, Tracey Vickers, Tweeted. The 40-year-old has to speak via a computer, using recorded samples of his voice. Across the chest - 38 stripes to represent Rob's age Along the back - The distinctive Rob Burrow and MND Association logo with 10 from the sale of every shirt going to the MND Association Across the heart - Rob Burrow's iconic number 7 with the Leeds Rhinos badge at its centre You can regress quickly but then you plateau for a while. Please dont hesitate to get in touch if you need us: 2023 MND Association: Registered in England. Over the past few weeks we have found a pattern for our interviews. I dont think you ever know your inner strength until you get told you are dying, says the former Leeds Rhinos rugby league international who is a prisoner in his own body. Rob Burrow left viewers in tears after his emotional appearance on BBCSports Personality of the Year. He writes them with a sense of wonder. After picking up a special BBC award, Kevin addressed the emotional audience. Jude's son Jody died of MND in 2017, when he was aged 38. Robs birthday is next month, mines in November and Jackson turns three in December. Order yours now by CLICKING HERE, HEADINGLEY STADIUM, ST MICHAELS LANE, HEADINGLEY, LEEDS, LS6 3BR, Match winner Austin says he will savour Saints victory. Thank you for sharing my story." Mum, Jackie, said her rugby-mad son was . I want to make the most of the time I have left, ob Burrow can no longer talk and yet, on a rainy bank holiday evening at home in Pontefract, he answers another of my questions about life and death. In another scene, his mum, Irene, spoon-feeds him. I firmly believe a cure is possible or at least a treatment that stalls the progression., Robs optimism is buoyed up by his father, Geoff, who scours the internet and talks to specialists around the world who give him hope the battle against the disease is not as futile as some people believe. I appreciate the simple things. If it was down to me, I joke, I would sack Sinfield from his position as director of rugby at Leeds Rhinos and make him prime minister. Motor Neurone Disease is a progressive and ultimately fatal disease. ", BBC Sports Personality of the Year is available to stream on BBC iPlayer now. I would have asked [the restaurant] but Rob smiled and said: I dont think blended chicken nuggets would taste very nice. But his appetites so much better than it was., I ask Rob if he worries about not being able to swallow one day, which would mean the insertion of a PEG (Percutaneous Endoscopic Gastrostomy) so he can be fed through a tube. The former Leeds and Great Britain scrum-half is now confined to a wheelchair and unable to perform basic functions without help as motor neurone disease takes an increasing hold of his body. If you need help or advice on donating, were only a phone call or email away. Once able to tackle others, throw a ball, and run, Borrow now needs help with. And so even after we talk about difficult subjects he tells me about his enduring love of The Office and how he watched Line of Duty with Lindsey while trying to work out who H was before the final episode to no avail. ", Wife Lindsey says: "I can't imagine a world without Rob.". "In sport and certainly in rugby, the connections you make, the friends don't just stop when the whistle goes. "Everybody would rather start a match than be on the bench, but you do whatever is best for the team. In a BBC Look North interview, the ex-Leeds. It has felt strangely natural to reflect on the inevitability of death not long after Rob has grinned at the revelation that when one of his old teammates, Barrie McDermott, the imposing former prop, visits him he ends up laughing so much that he cannot stop farting at the same time. "He always says, 'find somebody else, you're still young'," she explains tearfully. He avoids another heavy tackle, sidesteps Saints full-back Paul Wellens, putting him on his backside, and skips past an attempted tap-tackle. ", He continued: "It might be pure coincidence but I would love to see myself without the pandemic.". The former Leeds and Great Britain scrum-half is now confined to a. "I need my parents for everything. Leeds Rhinos Commercial Director Rob Oates added: It is fantastic to see our partners at Oxen working so closely with the MND Association, a cause that is close to the heart of all Rhinos fans. His latest challenge, Ultra 7in7 will see Kevin running from Murrayfield Stadium in Edinburgh to Old Trafford in Manchester in just 7 days the equivalent of around 40 miles a day. Former Leeds Rhinos team mates Rob Burrow and Kevin Sinfield have been vocal MND campaigners since Burrow's diagnosis in 2019. Credit: PA MND affects the brain and nerves, causing weakness that . It tries to rob you of your breath. It is a degenerative condition for which there is no cure. A montage of his daily life played out on the big screen and to viewers at home, who were clearly moved by the scenes. Broadcast in 2022, the BBC documentary Rob Burrow: Living with MND took an intimate look at Robs life with MND more than two years on from his diagnosis. One of Great Britain's greatest rugby league players, Rob Burrow, is being helped into a swimming pool by his wife, Lindsey. I was really encouraged when I saw Dr Jung. The former Leeds and Great Britain scrum-half is now confined to a. Also featured on the documentary, the second focusing on Robs fight with MND, are interviews with his family, and fellow MND Association patron Kevin Sinfield. It is full of compassion, tenderness and love. The pain and the sorrow are hidden then in the shadows beyond the summerhouse. "I hope that the message gets across tonight," Burrow Tweeted on Tuesday, October 18. pic.twitter.com/LvByIpWfNq, 2023 MND Association: Registered in England. Everyone has their own way of dealing with things., The Burrows have been boosted by a recent consultation with Robs specialist in Leeds. It is a challenge interviewing a man who cannot speak but Rob uses a voice app called Eyegaze to express his thoughts. Once able to tackle others, throw a ball, and run, Borrow now needs help with putting on a shirt, walking, and eating. The MND Association focuses on improving access to care, funding research, and campaigning for people living with, or affected by, MND. I never feel I will be out of here before I am done.. I did not think she signed up to look after me so soon," he jokes. Leeds Rhinos legend Rob Burrow has been diagnosed with motor neurone disease (MND). It feels almost magical as his familiar Yorkshire voice fills the room even though Burrow is smiling gently rather than moving his lips. While Rob begins typing, as if diligently doing his homework, I ask Lindsey if she felt fear watching him play. However, I want to make the most of the time I have left.. ", Rob said: "I was still coaching and living a pretty normal life, I've declined a lot since then because you become more centric. I would probably say no, just because it was bad enough seeing Rob play and theres always the question at the back of my mind: Is [MND] sport-related? I remember seeing how much Robs mum and dad worried when he was playing. Although I wont be there in body I will never leave their side in spirit.. In an intimate documentary, Rob Burrow talks to the NHS staff treating him for the condition. A mural depicting Rob Burrow is seen near the Emerald Headingley Stadium. Burrow is characteristically jolly and cheeky throughout, joking with the camera crew as they document his life since his diagnosis for a new BBC documentary, 'Rob Burrow: Living With MND'. Following the huge success of the launch of the Leeds Rhinos 2021 Legend shirt, OXEN have now introduced four more items which are exclusively available by CLICKING HERE. ROB BURROW hasn't been on the rugby field since 2017 when he had to retire from the sport he loves. Please note: Orders are currently being dispatched within 24 hours via Royal . In late 2019, Rob Borrow and his family learned that he had an incurable disease that would require 24-hour care. Rob is such a wonderful man and I am the person I am because of him. Since then, the former Leeds Rhinos and England rugby star has come face-to-face with much. steve carell house; external barriers to financial success; does tcs give joining bonus to lateral entry; which option is not provided with cloud storage For now, Bowen believes he is dealing with the illness and will keep that focus, saying he does not want to look "too far into the future" and instead enjoy living in the present with his family. There are times when I think about death, the 38-year-old told me in May, but Im not afraid of dying. Rob and Lindsey have been together since they were 15 and he said: Theres something beautiful about being cared for by the only girl youve ever loved.. There is no evidence that anything causes MND. Im trying not to be soppy but some of the things Lindsey does for me is proof that I have found my one and only. While Burrow jokes with the doctors and tries to maintain a positive attitude, the question of end-of-life care hangs in the air. She has to do the horrible stuff you don't ever talk about.". ", Glittering drama based on the audacious Brinks-Mat security depot heist, A corrupt copper and a Leeds gangster are bound together by decades of dishonesty. I hope she knows Id do the same for her even if Id do a much worse job.. There is no cure for motor neurone disease, but treatment can help to relieve symptoms and may slow down the condition's progression. Im out of my comfort zone, but at the end of the day its not about us. Leeds took the low road to a fourth Grand Final victory overSt Helensin five years, with the tiny scrum-half Rob Burrow providing the decisive contributions in this land of the giants. Dr John Hamlin: 7 Stories of MND. I miss being able to chew and taste the different textures. If you wish to donate to the MND Association, you can add a donation to your cart when purchasing products or by visiting the Donate page on our website. If that isnt the meaning of true love, I dont know what is., Too Many Reasons To Live by Rob Burrow is published by Macmillan, Rob Burrow: Ive had such a wonderful life. All I want is to see my kids be happy and have fun. Hed do a better job than Bo-Jo, Burrow replies, the laugh muffled inside him. It charts the romantic tale of how tiny Rob Burrow conquered brutal old rugby league against all odds, and helped turn Leeds into a powerhouse as they dominated the sport with homegrown stars who came up through the academy with him. The MND Association is the only national charity in England, Wales and Northern Ireland dedicated to improve care and support for people affected by MND, fund and promote research, and campaign and raise awareness so the needs of people with MND are addressed by society. The book goes on to reveal that Lindsey carries Rob upstairs to bed every night. Pa Sport Staff Sunday. Ive had a great life so I dont need anything else. Robs small stature made me worry and, being a physiotherapist, I understood the injuries. Former Leeds Rhinos scrum-half Rob Burrow MBE was diagnosed with motor neurone disease in December 2019, just two years after ending his playing career by captaining Leeds to a record-extending eighth Super League Grand Final.
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